Friday, June 6, 2014

Happy Anniversary!!!



June 1st was this blog's 3 year Anniversary!!!!!!!

I am so glad I started this 3 years ago! Wow! So much has happened . . . ups and downs. 

Its been so great spreading the word about Galactosemia and in return learning more from everyone out there too! 

Here is to another great year! Thank you to all of you that read my little blog! 

~Gregory's mama
xoxo

Tuesday, April 29, 2014

Bi Anual Metabolic Clinic Appointment



Last week We had Gregory's Bi Annual Metabolic Clinic Appointment. Its a very long appointment. We are seen by the geneticists, the nutritionist, social worker, and psychologist. Everything went pretty smooth all in all. I filled in the psychologist with everything Gregory has been going through. She wants to look at the possibility of Gregory maybe having ADHD. She said you can have this with out the hyper sensitivity part. I'll keep you all posted. Otherwise, he is a happy healthy boy! Praise the Lord!

Monday, April 21, 2014

Update

Gregory has been at his school a month now. So far so good. I feel like he is already  learning more but he is still behind. Working on writing letters, site words, writing numbers, ect. They work on behavior and for the most part he has been doing good. There are days when he doesn't get to go to treasure box. This is the daily reward for good behavior. I can't believe school is out in a little over a month! I'll let you know how the rest of the school year goes.

Thursday, April 3, 2014

Food

I thought I'd do a post on food and what Gregory typically eats. I have not done a post on this in a long time. You may or may not know Gregory's dad and I have joint custody of him. So, I don't really know what he eats over there . . . but with me, it looks something like this:

Breakfast:

~Plain bagel or toasted with dairy free margarine.
~Cereal with rice milk.

Lunch:

~Turkey sandwich (Bread and turkey have approved ingredients), fruit, fruit snack, juice box, and approved pretzels or chips.

Dinner:

~ Fish or chicken breast with roasted Brussels sprouts and potatoes.
~Tacos
~Spaghetti

Snacks:

~Ritz crackers
~Graham crackers
~Fruit
~Tortilla chips
~Bagel

Dessert:
~Dole chocolate covered bananas
~Oreos
~Coconut milk ice cream

Friday, March 7, 2014

New school.

Hi all! So A LOT has been going on with Gregory at school. I've been a little too overwhelmed to do a post . . . and new things keep happening. I will try and give you the readers digest version. 

Its been a little over a month now . . . Gregory has always struggled with some behavioral issues at school . . . they have just really escalated. After several meetings with his teachers and thearpists . . . trying new things . . . changing his IEP . . . a couple more meetings . . . we have decided he needs a more self contained classroom. His current school does not have something like this. Only 2 other schools in the district offer something like this for Gregory. One just happens to be right down the street from my house and its actually where I went to school K-6th grade. :) 

He will be in a classroom with one teacher and two aids. There will only be 10 other kids. It seems like a very contained, positive, strict, structured, fun classroom. They can deal with and accommodate all the things Gregory struggles with. The whole goal is to get them back into a main stream classroom. They get the behaviors under control first and when they are ready they let them back into a mainstream classroom little bits at a time. They also join another kindergarten class to go to specials and lunch with. One of his neighborhood friends is in this classroom. So, he already has a friend. :)

I think it will be really great. I'll keep you guys posted. Thanks for listening!

Wednesday, February 5, 2014

Wanted: Wisdom & Guidance

Hi all . . . I'm going to try and keep this short and sweet . . . going through a hard time with Gregory again. His SPD/Behavioral issues have escalated lately. There are many things that can be contributing to this . . . but even with out these contributors, he still had issues. His therapy wants him to see a physiologist. So does his school. It is amazes me that these people who are around kids all day long can't figure Gregory out either. He truly is my Mystery Boy. 

I'm at a point right now where I don't really have any words. I feel kind of numb. 

There are 2 things I am certain of right now . . . 

1. Even though I know I'm doing the best I can . . . my mommy heart aches at the fact that there is something Gregory needs right now and that I don't know what it is. My heart literally aches. 

2. I don't want Gregory falling into the trap of thinking he is a "bad" kid. This makes my mommy's heart ache too. 

I want to remember how far he HAS come. That this too shall pass. 

I will sign off just asking for prayer. Prayer for:

Wisdom . . . being the best parent for him. 

Wisdom . . . for all his teachers/therapists. 

Guidance . . . on just what to do and what steps to take. 

Healing . . . of his sweet body and mind. That he would be in better control of his body and mind. 

Protection . . . over my sweet boy. 

Thank you to all of you out there listening.

Tuesday, January 21, 2014

Hi.




Hi all. Just wanted to say hi. I haven't been posting a lot lately . . . not a whole lot to report on. No news is good news . . . I guess, right? 

Everything is still pretty much the same. 

Kindergarten is going good. 

He still struggles with sensory stuff and some behavioral stuff. His therapy place wants us to see a psychologist or psychiatrist. 

He is still my mystery boy. 

He is still is the sweetest boy I know. 

He still is hilarious. 

He is getting so smart. 

He has his first loose tooth. I almost cried! 

Hi is still full of joy.  

He still is in love with books, firetrucks, cars, racing, running. 

He still steals my heart every day.

Friday, January 3, 2014

Happy new year!

Happy New Year! 

We first met Papo and Mimi for dinner at Applebees. Gregory had the usual . . . hamburger, fries, and lemonade. 

Then home to do silly string of course! 



And sparklers. 


Followed by a quick shower and jammies. Then on to popcorn and champagne for mommy. 


The next day we did a 5k with Papo and Mimi! A great way to start the year! It was so fun and family oriented. Gregory did not make the 3 miles though. 
 

Cuteness. 
 

Celebrated with mimosas and sparkling cider! 

Here is to a great 2014!!!!




Thursday, January 2, 2014

Christmas 2013

This is a little late but wanted to say Merry Christmas! Here are a few snap shots of our Christmas Season! 

Our Tree! 


Talking to Santa at Home Depot. 

 

I finally gave in . . . meet "Chance". 

Snow (fake) at Tempe Market Place! 


Early Christmas with Papo and Mimi. Dinner at Z Tejas where he can have the hamburger, fries, and lemonade!


Gingerbread house. 


Polar Express night with Bobby, Poppy, and cousins! 


Mamo flew in on Christmas Day! So fun! 


Jesus' Birth. 


Snow at the Arizona Science Museum. 


Hope you all had a very Merry Christmas!







Monday, December 2, 2013

Cream cheese


So, we are in LOVE with Daiya products!!!!! They make a cream cheese which is awesome because Gregory LOVES bagels. I asked him if he wanted to try this . . . preparing for him to say no because he is not good about trying new things. . . and to my surprise,  he said yes! And loved it! Yay! Another thing to help him feel more normal with his diet. (Well, he probably doesn't even care . . . its more his mama.)




 

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