Gregory's Galactosemia
Join me in my journey on learning more and more about the metabolic disease, Galactosemia.
Monday, May 20, 2013
Therapy.
Gregory is back in OT again! We love our therapist! We're going to Fiesta Pediatric Therapy! They are great. He goes every week!
He'll hopefully go for Speech and Physical Therapy as well! Keep you posted!
Tuesday, May 14, 2013
This
mama needs to brag for a moment . . . Gregory is doing so well in some
areas that we have waited a long time for . . . and this mama is so
proud!
1.
(TMI) He is finally going #2 on the potty all the time!!!!!!! For those
of you who know us well, we have been we have been waiting on this a
long time!!!! No more poopy pants!!!!!!!
2.
He can get dressed all by himself!!!! Thanks to his daddy and his step
mom working with him he can now do it!!!! Wahoo!!!! Saves mama time in
the morning. :)
3.
He is getting much more comfortable in the pool! To those of you who
know us well, this has been a huge struggle summer after hot hellish
summer of him not wanting to go in the pool. He has taken swim lessons
every summer since he was born. Well, I'm committed to taking him in the
pool every day on the days I have him and its paying off. By the end of
the summer he will be swimming! He has to! Its Arizona! And it doesn't
cost anything!! Well, most of the time.
Monday, May 6, 2013
Social Media
Just wanted to make sure you know we have a page on face book called Gregory's Galacotsemia ? Come check it out and "like" us.
I have my own personal Pinterest account. I like to post some recipes and sensory stuff! Its a great resource!
Wednesday, April 17, 2013
IEP
Gregory had his IEP meeting a few weeks ago. All in all it went really well. Kind of big one since this is the one that will carry him into Kindergarten!!! Cannot believe my little boy is going to be in Kindergarten!!!!
I'll try and give you just a general idea of how it went. Although Gregory has made progress, he is still delayed cognitively, in speech articulation, and motor skills.
We all worked together to come up with goals that will best help Gregory in all these areas. The IEP was very detailed so his new teacher will know exactly how to best help Gregory. He will benefit from the use of a part time aid. He will receive speech therapy and Occupational therapy. I'll keep you posted on any new information!
Tuesday, April 16, 2013
Easter
Better late than never. Easter was nice. Just met Papo and Mimi at church . . . Back to our house for lunch. All Galactosemia friendly:
Ham
Rolls
Salad
Fruit
Chips
Deviled Eggs
Oven roasted potatoes
So yummy!
Gregory was getting restless inside church so went outside to let him run around and had fun taking pictures.
Easter Egg Hunt!
Labels:
family,
fun,
Fun times,
Galactosemia,
holidays
Sensory Sand
Sunday, March 17, 2013
Friday night pizza and movie night
I've been wanting to start some new traditions with Gregory. Growing up my parents and I would make home made pizza every saturday night and eat it while watching Star Search! (I'm dating myself here.) That was like the first American Idol, right? LOL. My mom would pretend to be "Zelda" and talk with an Italian accent. It was the best!
So, the past 3 Friday nights, Gregory and I have done the same thing! So fun! Although, he asked me to stop talking in my italian accent. Oh well. Hopefully he'll look back at this memory as fondly as I do. :)
Mine.
His.
"Horton hears a who"
5 year check up!
Gregory had his 5 year check up!!! He's doing good. Vision and hearing are good. He is 44.75 inches tall which is in the 81% percentile and weighs 46.2 lbs which is 80% percentile.
She gave us a Miralax plan to get him going number two on the potty. We started it Thursday. He has gone on the potty once so far. Fingers crossed!!!
Here is to another healthy year honey!
Thursday, February 21, 2013
Disneyland
For Gregory's Birthday my mom and I took Gregory to Disneyland for his first time! Anyone who knows me knows its one of my most favorite places on earth so to experience through my son's eyes was so fun!!!
We got a 3 day pass which was something I never thought I'd be able to do!!!! So worth it to just take our time and relax and take it all in!!!
Cars Land was amazing! So is the Radiator Springs ride!!!
Here are some pictures of our amazing trip.
PS. Gregory did AMAZING with all his sensory issues!
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